良医妙药

有个朋友的女儿得了这种病，Pompe病（庞培氏病），大家都很难过，没想到还有有这样一部电影，大家都在想办法，据说只有美国这种药能治，去美国治疗目前不太现实，不知道另外还有什么渠道能治呢？唉，，，

《不存在的女儿》The Memory Keeper's Daughter属同类型电影 很容易理解这个电影，其实是没有希望也不可治疗的。每个人都有自己的基因缺陷，只是对人体的影响强度不一样。人吗为爱而生存，现在的社会生存压力太大把人都弄的心理畸形了，我感觉这个比疾病更可怕。

       科学家大概都有那份天真吧！
    一个绝妙的idea，到真正能治病救人的药物，这之间经历的恐怕是人类最伟大的智慧也难以做到的，那就是精神和意志的力量。

    片中很多科研的细节只有行内人才能体会到吧，比如实验室突然断电，如果不及时续航，那些冰箱里的宝贝细胞株就全玩完儿啦，想起当年俺们实验室停电，为了冰箱里的样品，俺们生生的把个大冰箱推出实验室好远好远。还有那几个小组不愿意交流，也许不仅是商业上的考虑，从研究人员的角度，也是会认为自己的途径才是正确的，这虽然不利于整体的进步，但是人类避免不了的本性啊！还有那些在实验室埋头工作的年轻人们，没有人会记得他们，也许只有实验成功时能够分享到的喜悦，是他们最值得安慰的吧，可能不久的将来，俺也会成为他们中的一员，希望自己的埋头工作，除了换得自身温饱之外，也能体会到那样的喜悦时刻。

Is it a blessing?

When the Doctor told Mr Crowley that we had done our best,i'm sorry .But maybe u could take it as a blessing for ur daughter finally get rid of the suffering. At the moment i was thinking the doctor is right. Death is much better than endless pain ,especially when urself is not only the one who is suffering but ur loved ones as well. Maybe this is the best ending, a blessing. However, John and Aileen were silent without a saying anything. Then i suddenly realize that was cause they know at that moment under such circumstance, any single word would be capitulation to death as well as a betray to their beloved daughter. They havd confidence in her just like the little girl had in herself. They just knew that she can make it, they all wanna a miracle.

Megan and Patrick are born with the rare disease of Pompe. They are children born to be die. Their life expectancies are estimated much shorter than normal people.For most of their lives,they are bound to a chair, supported by a respiratory system. They've been deprived of running with laughter and joy and all sorts of games played among other children. However, what can be called as a blessing is that they have got the greatest parents in the world .Their love, to some extend, is incomparable.

When Megan's life was jeopardized and lying in the ICU, her desperate father ,Mr Crowley just threw away all his responsibility and flew thousands miles across to save her little daughter's life. He wanted to make a miracle himself.

This decision was crazy and totally out of desperation, it's far beyond the father-love u can ever imagine. When his rushed out from his office where a important meeting was on the go, without telling her wife a single word about his plan, he was ready to take the risks and sacrifice all he owns to save her daughter. He knew that if he ruined the meeting he would lose his job, and , the children's health care. That means they'll have no money to gain treatment which will sustain their lives.

It's too risky, especially, when u even know nothing about who u can turn for help, where exactly he is, whether or not he will help u, how he can help and what the results are. The desperate father just want to have a try without a moment's hesitate. Because he knew, if u just sit there and wait, there will never be a miracle taking place itself. Miracles are been made by our own hands.

Then, fortunately or not, whatever u say, Mr Crowley found this eccentric and stubborn old man--Professor Robert Stonehill. Its not a easy job to get along with him. Let alone start a tough business with him. He has the cure to save Megan and Patrick, that's why such a weird man finally became a blessing to The Crowleys. The way to save lives is not smooth, even much stiffer than u can imagine. But just like any other courageous heroes and encouraging stories, the movie got a happy ending. A blessing, u may call it, endowed by love and persistence.

Blessing, we can make it.

这句话在影片中有很深的含义，一面告诉我们要珍惜眼前的幸福，另一面告诉我们时不我待。在决定准备考托以后看了这个片子，感觉很震撼。许多事是天定的，但还没轮到老天来决定的时候，机会就在我们手里！Just do it!

《爱的代价》也被翻译成 《良医妙药》


深夜，一个人，看完这部电影。



感动...



感动我的不是什么煽情的眼泪飙飞，而就是那个在鬼门关走过一次的小姑娘--梅根。



梅根因为从小患庞氏病（肌无力症），只能坐在一个电动轮椅上，但孩子的可爱之处就是，她就是一孩子。



没有想象中的自怨自艾，自暴自弃，因为是孩子，尚在父母的羽翼之下，因为是美国的孩子，可以用完善的保险制度来支持自己的养病历程。



因为是孩子，她一样喜欢娃娃、喜欢粉红色、甚至喜欢短跑---用电动轮椅和其他人赛跑~~



梅根有一对非常优秀的父母，父亲勤恳上进，哈佛的高材生，医药公司的高管。为了给梅根和弟弟治病，不惜放弃事业，与一位教授合作开发治病的新药。



在这个过程中，自然步履维艰。



我关注的是步履维艰的情况下，父亲是否动摇过。



恩，影片令我满意的是，父亲也是真实的人，他也动摇过，是接受这个病是绝症，多抽时间陪孩子走完剩下的路？还是继续倾其所有、孤注一掷地和教授共同开发新药？



动摇的过程，我以一位母亲的心试着去理解。我想，我没有他的那份坚韧和执着... 我很惭愧...



最后让我感动的人，是那位怪异的教授，哈里森福特扮演。不帅，却非常酷。



教授，总归是知识分子，沉浸在自己的研究结果里，不关心公司运营，不关心新药上市的时间表。



但在资金的压力下，他也只能咬碎了牙吞进肚。让我感动的是，他在面对那位父亲不得已的“背叛”后，竟能理解那位父亲，实在是值得我致敬！



感动，无论对什么，都只是感性的层面...



这部影片是根据真人真事改编的，我相信，无一丝怀疑。



细想下，如果这件事发生在中国，会怎样？



首先，无论这位父亲事业如何有成，没有国家的保险保障，是无法负担家里有两位庞氏症孩子的现实；



其次，父亲为了孩子放弃自己的事业，全力投入到充满未知的事情中去，这对保守、中庸的中国男人绝对是非常非常大的挑战；



还有，教授，科学家，为了坚持自己的理论，在许多问题上都缴械，只为证明自己的理论最终是对的。



最后，新药的临床实验。公司为了避嫌，为了不产生利益冲突，只能把那位父亲解雇，才能给两个孩子进行临床实验。哈，在中国，刚好是相反。只有内部人士才能享受到最新最好的医疗成果。



so，感动之余，只有丝丝凉意... 在这凉如水的夜里...